By Linda Titel
Jordan Schadrie turned 18 and is going to be a senior at Seymour High School this fall, but she is in the battle of her life against Ewing Sarcoma.
Schadrie was an active teenager involved in many extra-curricular activities, including volleyball, basketball and track.
Brian Schadrie, Jordan’s father said, “Last year around Thanksgiving time, Jordan had some pain in her leg, since she was very active in school and sports, we brushed it off as a sports injury or a pulled muscle. We gave her ibuprofen or Tylenol and that seemed to help but in time the pain increased, especially at night, she would wake up from the pain so we decided to take her in to the doctor.”
Candace Schadrie, Jordan’s mother said “We thought maybe she sprained something or pulled a muscle so when we took her to the doctor they sent us to an orthopedic doctor who took some x-rays of her leg. After examining the x-rays, the orthopedic doctor just laughed it off saying he didn’t see anything, the leg wasn’t broken and everything looked normal. He told us we could do some blood work, get a magnetic resonance imaging (MRI), or go to physical therapy, it was up to us what to do next.”
The family had a brother -in -law that had some good results in massage therapy so they ended up looking up a local chiropractor. The chiropractor saw Jordan on a Friday, did the measurements and saw that Jordan needed an insert in her shoe to help straighten her back, the chiropractor thought this was something she could treat and Jordan should see some results after adjustments.
Candace said, “We really thought it was a pulled muscle or some sports injury, she played a sport every season, volleyball, basketball and track.”
Jordan went to the chiropractor and had some adjustments, which she thought helped her but then the pain got so bad she had to miss school. Jordan had an appointment on Wednesday that week but it was only Monday so Candace called the chiropractor to see if she could get in right away. Jordan got in right away with the chiropractor who after working on her told her parents that she wasn’t responding to her treatment.The chiropractor ordered a (MRI) scan which they did right away.
They took separate cars to the MRI because Jordan had a field trip that day at UW-GB and she wanted to meet up with her class after the MRI. After the MRI Brian left with Jordan to drop her off at the field trip and Candace went home.
Candace said, “About 25 minutes after I got home the chiropractor called back, it was a really hard phone call. The chiropractor said I’m really sorry to tell you that Jordan has cancer, they found a large mass on her pelvic bone, she told me what she thought the cancer was but it had to be confirmed. It definitely was a large mass. I was in shock so I made the chiropractor repeat everything about four times before it really sunk in.”
The chiropractor told them to pack their bags and go to the Milwaukee Children’s Hospital. She said when they arrived they should go to the ER so they would be seen right away, otherwise, if they made an appointment they would have to wait. The chiropractor told them just to go immediately and pack a bag in case they had to stay.
Candace said, “I called Brian right away, he was in the parking lot with Jordan, I told him what it was, he was in shock, I told him he had to come home with Jordan right away so we could take her to Milwaukee Children’s Hospital. I called my mom and dad and they went to pick up Jordan’s younger 16 year old sister Gracie from the high school so we could all go to Milwaukee together. We were all in complete shock, you never expect to hear your child has cancer, you know children get cancer but you never think it’s going to be your kid.”
In the ER at Milwaukee they did a computed tomography (CT or CAT)chest scan and they saw that she had masts in her lungs. The next day they had an appointment, and they did a biopsy, surgery to help identify what type of cancer it was. They also took a sample of her bone marrow. The family then had to wait for the results to come back.
Jordan also had a positron emission tomography (PET) scan which is an imaging test that helps reveal how your tissues and organs are functioning. Anything that lights up in the scan is cancer and Jordan had multiple areas light up.
Candace said when they went back to Children’s Hospital they brought the whole family with them and they had a consultation with the doctor about Jordan. The family found out that Jordan has Ewing Sarcoma which is a rare and aggressive soft tissue and bone cancer that is not hereditary. Candace said it was a rough day for all of them, they found out that with Ewing Sarcoma it’s either localized or metastasized which means either the cancer is in one area or it has spread to other areas. Jordan’s Ewing Sarcoma had metastasized at diagnosis which means it had spread. Jordan basically has stage 4 cancer with an inoperable large tumor on her pelvic bone.
Brian said, “Jordan has also suffered from asthma since she was a baby, and when she had her first chemotherapy treatment her breathing was labored.”
Candace said, “There is a protocol and everyone with Ewing’s does the same medicines, it doesn’t matter which hospital you are in, it’s like a protocol they do all over the United States. So we started that, it was 14 rounds of chemo every two weeks for five days of treatment and then the next two weeks there were two days and it would switch back and forth. Jordan received different meds during each treatment.”
Brian said, “As treatment progressed through the cycles it takes her body longer to recover, it’s attacking the cancer cells and her bone marrow, so Jordan had blood tests weekly. She was right on track with her blood test until she had radiation. She had never gotten a fever or infection the whole time although we did go into the ER once because she wasn’t feeling well and they gave her some antibiotics.”
After cycle four of treatment scans were done to check if the chemo was working and Jordan’s scans looked really good. Candace said, “We were all crying, we were so happy.”
Although the chemo treatments made her sick, mainly nauseated, her pain in her leg went away. The doctors experimented with meds for her nausea. After the first two weeks of chemo she would feel better until the next round of chemo.
Radiation started on May 1 for 31 days, most of that centered on the main tumor on her pelvis.
Candace said, “For six weeks we drove down to Milwaukee everyday, that was our routine, the treatment only lasted a half hour, the radiation was only four minutes the rest was prep time.”
Holding back tears, Brian said, “The tough part about all of this is that our 18 year old daughter, Jordan is in on all of the consultations and she knows what is happening to her.”
Candace said, “It’s a tough thing to go through, after nine rounds of her treatment her scans came back to show that the chemo stopped working. They didn’t tell us that she could relapse on treatment. At this point all we can do is try different chemo’s and hope something works.”
Brian said with the relapse of Ewing’s, there are not a lot of options out there. There are clinical trials, some relapse chemotherapy, it was suggested that after two rounds we have scans done to see if the chemo is working, the next scan is scheduled on Aug.12.
Jordan’s Ewing Sarcoma is back in her lungs and now she is on oxygen when needed.
The family just recently returned from a trip to Houston, Texas. Justin Vande Hei, Jordan’s boyfriend also went along.
The trip was two-fold, to have some family fun and also speak to a specialist of Ewing’s Sarcoma at MD Anderson.
MD Anderson doctors reiterated that they are on track with Jordan and her treatment. The family had brought Jordan’s wheel chair along but she was resilient and was able to walk on the beach and even join the family at line dancing.
When they returned from the trip, they went to Milwaukee and got another scan done, which showed the tumor in her lungs was progressing. Candace said, “That was a really heavy day for us.”
Jordan will be receiving a portable oxygen concentrator so she can still go out.
Her brother, Jared had just gotten married to his wife Maria on July 20 and Jordan was able to stand up in the wedding. Candace was afraid they might be in the ER with Jordan but they had a great day. Jordan’s sister Gracie also stood up in the wedding. Jordan and her sister even sang two songs during the wedding. Candace said, “There wasn’t a dry eye in the church.”
They are still in contact with the doctor at Houston.
If her lungs get better, and she can walk around without oxygen she would be eligible for the clinical trial. The trial is specifically designed to stop Ewing’s Sarcoma, it is different from chemo, but they are not experts at it yet.
The family is currently at Jordan’s “Make a Wish” trip to Key Largo, Florida.
Jordan hopes to have some animal encounters and hang out on the beach with her family and boyfriend.
The family had just moved back to the area. They formerly lived in Eau Claire. Both Brian and Candace are Seymour High School graduates. Brian and Candace wanted to be near their parents. They are very close to their family.
Jordan and Gracie attend Seymour High School. Jordan will be a senior this year, her schooling since she had been diagnosed was home based and will continue to be to avoid illnesses from other children.
The family now resides in rural Shiocton.
There will be a benefit for Jordan’s fight on Aug. 23 at Romy’s Banquet Hall in Black Creek.
There are three different ways to donate to the benefit, through basket raffles, big or small, monetary or cash donations, checks payable to Brian Schadrie and mailed to Capitol Credit Union, 1401 S. Commercial Street, Neenah, WI 54956. Please note in memo Jordan’s Fight. Please consider giving to Jordan’s Fight by Aug. 12.
Jordan is also involved with “My Friend Linkin.” It’s a non-profit where kids write books for kids about childhood diseases like cancer.
Brian and Candace said that Jordan has a really good attitude and sets small goals to keep her going. Candace said, “She has a strong will to live and wants to go to college. We will do everything we can for her, keep positive thoughts and keep on praying.”
Eric Schadrie, Jordan’s uncle said, “Jordan always has a smile on her face, she is always smiling even after all that she has been through.”
Jordan is supported by her parents Brian and Candace, sister Gracie, brother and sister-in-law, Jared and Maria Schadrie, grandparents Noel and Judy Marcks, and Pat and Ann Schadrie, and special friend Justin Vande Hei along with the love of many aunts, uncles, cousins and friends. Please contact Colleen Maass at (920)750-2027 with questions or to donate a raffle item.